Posts Tagged ‘condolences’

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Heaven is a better place today, and here on earth it’s a sadder place, because our good friend John is no longer here. John and Linda were inseparable, always always always giving, smiling, and serving others. John and Linda, always in the kitchen, together, cooking up a storm for church lunches…..always giving hugs….always ready to pray….travelling, to Africa and Mexico to help poverty stricken children….standing in the cold snow here in Canada ringing those kettle bells at Christmas time. They raised a beautiful family together too, and were just starting to enjoy the empty nest. John passed away from liver disease today, and his family, friends, and even strangers, will be missing out on one of God’s kindest and warmhearted person i have ever had the privilege to know. John was special, he loved God, he loved his family, he loved his friends, and he loved strangers too. They say heaven is a beautiful place, but i think that today, heaven is even more beautiful, because John is there. And here on earth, is beautiful too, because John has been here. John will be missed very much by his wife and family. John was very very special.

There is a special song called Friend of God. I want to dedicate this song to John, because John was a friend of God, and i know he would like this song so much.

Bless the Lord, O my soul: and all that is within me, bless His holy name.
Psalm 103:1

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Jan 19/07 Sad

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I’m so very sad this week. So many people passing this week, and all at once, and it’s just hard.

It’s so many, all at once, all at the same time, and it’s just very very shocking, and i’m just being honest that this is so very hard to take in all at once, and it’s frightening. It hits very close to home, and i’m sure i’m prob not the only person feeling this way. So good to have all of you for my friends. I guess hd is terminal, i guess, guess we’re being hit with it hard this week, i guess, does someone up there think we need a reality check on all this? I dont think so, but sure seems like it, i dont know. I guess stuff just happens, nothing can do about it, but would be nice if there was a cure. It’s ok to feel sad, it’s a part of life, and it’s ok.

I will remember three special people…….they are free now, and that is good, and I will remember them with a smile.

“Every good gift and every perfect gift is from above”

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Honoring Michael

Last week, I wrote a bit about my HD journey, and how special friends have helped me along the way, people whose lives have also been touched in one way or another by HD. I wanted to begin to share a bit, how some of these friends have been such an inspiration to me, and helped me with my journey.

I wanted to start with my good friend Gordon. You see, the first time I met Gordon in the chat room, I was feeling sorry for myself, being newly diagnosed with HD, but I decided to say, tell me about yourself Gordon. He began to tell me about his son Michael, who has Juvenile HD, and my jaw just hung open in astonishment, as this kind man began to tell me about the misfortunes in his life, and how his family is so special to him.

Please read Gordon’s story, it is a very special story, one that will inspire you, one that will tell you no matter what is going wrong in life, to carry on. Gordons son Michael passed away today, at the age of 19, from Juvenile Huntington’s Disease, and he will be dearly missed by his family and friends.


Here is their story, as written by Gordon for the jhd families forum last July:


There are a few special people in this world, who truly, when life gives lemons, turns it into lemonade, and Gordon is one of those people. He is a huge advocate for JHD, always trying to raise awareness of the disease, and always always trying to help others in the HD community. And more than anything, always telling the world about his son Michael. If I was to say that Gordon is a true hero in the HD community, he would say, no, the true hero is my son Michael, and I have to agree with that.


On hearing the news of Michael’s passing today, there were many condolences, here are just a few of them:


Dusty said, “Alas, Michael’s battle is over. There is so much love and strength in your family, and you did a fantastic job providing love, discipline, hope, fun for Michael as he went the course of JHD, a horrible job for any parent or family.
I pray that you and your family will remember him without HD. Michael was fine young man whom we all loved here, and we will honour his memory with you. “

Marsha said, “Dusty’s right, Gordon, all of us will honour Michael’s memory along with you. I only knew Michael through you but he must have been a remarkable young man to inspire you to advocate on behalf of JHD patients everywhere and to provide support to others who are dealing with Huntington’s Disease in their lives. Michael was fortunate in his father and his sister. He left this world surrounded by love and I know he entered the next world the same way. You and Kirsty are in my prayers and I will be thinking about you. “

Eric said, “Michael had a full and rich life. He had loving friends. He had spirit. He had fight. He had the Rangers. He met his hero’s. His hero’s met him and he became their hero. Micheal had fun. He had school. He had beer and nights out with the boys. He had a fondness for the ladies and one in particular. He had inside jokes to laugh about and off color ones too. He had his own “pad”. He had the attention of people throughout Scotland and throughout the world. He had the best fortune of having Gordon and Kirsty and their love and caring. He had smiles, laughs, and a love of life. He gave us all fond remembrances and the inspiration of a life well lived.”

And these were my thoughts for Gordon, “Gordon, I didnt know Michael, but I did know him, I knew him through you. Many times, when I have chatted with you, and I have been feeling down, you would help me feel better. Not by talking about whatever had me down, but instead by telling me stories about Michael. Even though I didn’t know Michael, it was Michael that always cheered me up, and put a smile back on my face. It was like, you became Michaels voice, his advocate, he lived through you. He was a wonderful son, you are a wonderful father. And as a caregiver, your giving has been endless. But, never, never, never, as tired as you were, did Michael get spoken of with the utmost respect and dignity. You are a person who has taught me what true grace and humility is. I love hearing the stories about Michael, yes, he has won the heart of Scottland, and the whole world. He did his HD journey with a smile on his face, and I hope I can too, just like Michael. Lots of love to you and Kirsty. “


Gordon, I hope you and Kirsty can begin to share many smiles together, as you remember good times together. I know Michael is smiling too, he is free now.

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